Participants needed for a Research Study - An examination of the Relationship between Sensory Processing and Emotional Regulation in Children with Autism

Seeking:     Parents with a child between ages 5 - 10

a.  Either typically developing (no disabilities)

b.  with Autism / Autism Spectrum Disorder

c.  be able to complete one time surveys regarding child’s behavior

Estimated time:  40 - 45 minutes

Please download a flyer HERE.

This is an autism genetics study thru IAN Resarch.  To participate, you will first need to enroll in IAN Research - the nation’s largest autism research project. Once you have completed your initial registration and filled out your “Family Profile” — which is a list of family members — you will be eligible to participate in the autism genetics study.
Participation in the study involves a free blood draw for your child with ASD and his or her sibling (if any) at a local LabCorp. Later, DNA is extracted and becomes part of a new collection of genetic information for autism research.
 
IAN Research completely understands it is not easy for parents of children with ASD to make time in their busy lives to visit LabCorp, and that taking children for blood draws is rarely a fun activity. That is why they are providing a token of thanks.  IAN will send you a $25 Amazon.com gift card for each child in your family who:

• Has submitted a blood sample, and
• Has a completed Social Communication Questionnaire (SCQ) in his or her section of the IAN Family Profile.

Learn more at the Interactive Autism Network website HERE.

If you are an adult with a special needs sibling you might take a look at the following survey.  HERE is a link to an article in Special Needs Parenting Magazine highlighting a previous study by this group. 

Their previous study focused on children (ages 5-17) who had a sibling with special needs. Thanks to the support of Don Meyer from the Sibling Support Project (www.siblingsupport.org) and other Sibshop organizers around the USA, they were able to send out over 1,300 surveys to siblings nationwide.  Parenting Special Needs magazine published many of their findings hoping they might make a difference with many families.  

This group of high school students then were asked to present their findings at the 1st International Sibling Conference (Greenwich, CT, Summer 2010  (http://siblingconference.org/). Theye were encouraged to continue with their research by so many adult siblings they met at the conference. 

So they are now excitedly contacting us about our new study.

They are working in consultation with Dr. Ann Kaiser from Vanderbilt University (http://peabody.vanderbilt.edu/x4862.xml) and with support from Don Meyer, the co-founder and president of the National Sibling Support Project (www.siblingsupport.org), the Sibling Leadership Network (www.siblingleadership.org) and many others from the International Sibling Conference.

 All responses will be kept confidential but they will be glad to share their findings with you if you send them a separate email to mblueglass@aol.com. Please type “Sibling Survey Participant” in the subject line of the email, to maintain confidentiality.  They also hope to share our overall findings with as many people as possible through sibling support groups, sibling conferences, and publications focused on helping the families of people with special needs.

Here is a link to the survey:
http://www.surveymonkey.com/s/Adult-Sibling-Survey

This organization is studying parent-directed, home based, behavioral programs for young children (1-7 years of age) with autism spectrum disorders (ASD).  The purpose of the study is to understand how parents manage these programs. Further, they hope that by presenting these findings to the behavioral and public policy community, better funding and other supports for parents conducting home programs may be made available. To view the survey and participate, go to

http://www.surveymonkey.com/s/EIBI

For additional information about the survey please contact Dr. Jack Scott at jscott@fau.edu or call 561 251-4104.

The Arc of Nebraska is beginning a strategic planning process to ensure we are delivering the best services we can to our members and local chapters. To help us in this process we have developed a survey that will give us information so that we may serve you to the best of our ability.

http://www.surveymonkey.com/s/NQ2YK3C

The Rothman Center for Pediatric Neuropsychiatry is conducting an internet study entitled Predictors of Impairment in Pediatric Autism Spectrum Disorders. The purpose of the study is to investigate the relationship between autism spectrum disorder (ASD) symptoms and functional impairment and to gain a comprehensive understanding of the co-occurring factors (e.g., anxiety, behavior, etc.) that may contribute to this relationship.

Inclusion criteria are as follows: (a) The child participants must have an ASD diagnosis; (b) The child participants must be between the ages of 5 and 18 years; (c) The parent or caregiver participants must have a computer with internet access and know how to navigate through the website; (d) The participants must be English speaking as we are unable to translate the measures due to resource limitations. Participants who do not wish to participate in the study will be excluded.

This study has no affliliation with the Autism Society.  Please follow the link bellow if you wish to participate…      http://hsccm2.hsc.usf.edu/checkbox/Survey.aspx?surveyid=4693